What's New at the Meso Foundation - March 2022

What's New at the Meso Foundation - March 2022

The Patient Travel Grant Program, founded by Mary and Bob Cosentino, was created to provide mesothelioma patients with financial assistance to travel and be seen by an appropriate mesothelioma expert, regardless of their ability to pay. The Foundation will cover travel expenses incurred by the patient plus one caregiver who travels with them for lodging/hotel room; gasoline; airplane, bus, and/or train tickets; and cab, Uber, Lyft, metro, or other analogous services. To qualify for this program, a patient must fall into at least one of these two categories: 1. One trip for one initial consultation with a mesothelioma expert. 2. Multiple trips to participate in an interventional clinical trial (found on clinicaltrials.gov). Each trip can be reimbursed for up to a maximum of $1,000, with the total reimbursements for all trips not exceeding $6,000 per patient/caregiver annually and not exceeding two clinical trials overall. The Mesothelioma Applied Research Foundation offers several mesothelioma support groups for patients, caregivers, and those who have suffered a loss: Facebook support groups provide an online connection, on your own time, day and night. Read below to see which group is best for you.  Mesothelioma Straight Talk: General Discussion (by US nonprofit) This group is for all members of the mesothelioma community to discuss topics of interest, ask each other questions, and connect. Mesothelioma Straight Talk: Patient Support (by US nonprofit) This group is for those who have been diagnosed with mesothelioma who wish to share and connect with others on this journey. It is a private room where all conversations are welcome, no subject taboo but will be held to a kind and gentle format in an attempt to alleviate some of the stress, celebrate some of the victories and seek comfort on those difficult days. Mesothelioma Straight Talk: Caregivers – Advanced Disease (by US nonprofit) This group is for caregivers of patients with advanced disease. It focuses on symptom management and treatment of advanced disease while still providing hope to those who are struggling with a multitude of caregiving challenges. Mesothelioma Straight Talk: Caregivers – Early Disease (by US nonprofit) This group is for caregivers of patients who are in the early stages of mesothelioma requiring little in symptom management, who wish to focus on hope, support and navigating through treatment and decision-making. Mesothelioma Loss Support Group (by US nonprofit) Losing someone you love at any time from anything is tragic enough, but losing someone to mesothelioma adds levels of emotion not experienced outside this unique circle. This group is a supportive community for everyone who has lost a loved one to mesothelioma. If you are not a member of these groups but are a patient, caregiver/family member, or if you are grieving the loss of a loved one, you are welcome to join them and participate. Please contact Meghan Butler at mbutler@curemeso.org for more information. Because we take confidentiality and privacy very seriously, call-in numbers and invitations to the Facebook groups will only be sent to you after you register with us. Please contact Meghan Butler at mbutler@curemeso.org or 703-879-3824.

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